My name is Dr Rachel Stocker. I am a Research Associate in the Population Health Sciences Institute, at Newcastle University.
We would like to invite you to take part in this research survey exploring physical activity and wellbeing during the COVID-19 pandemic, for those with type 1 diabetes.
Adults with type 1 diabetes, and parents of children/teenagers (aged 0-17) with type 1 diabetes, are being asked to complete this survey.
It will take around 10 minutes to complete this survey.
Participation in this survey is completely voluntary.
Your responses will be kept fully confidential and your name or any other identifying information will not be disclosed in any publications generated from this study. All data will be stored in accordance with University guidelines and GDPR. Personal, identifiable information, such as contact details, will be destroyed when the study ends. This survey uses the JISC Online Surveys platform via a license purchased by Newcastle University. All collected data will be stored on the Online Surveys platform and locally on password protected Newcastle University computer servers. Only the research team will have access to data collected, and your individual responses will not be shared with anyone outside of the research team. When the research is completed, the research team will keep the data for 5 years.
As a university we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible. If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer, Maureen Wilkinson, at firstname.lastname@example.org , who will investiate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner's Office (ICO).
The survey is anonymous for those who do not provide their email address to be contacted. As such, once you complete the survey the researchers will not be able to determine which survey answers belong to you so your information cannot be withdrawn after that point.
Please note, that by continuing, you are providing your consent for participation. If you do not wish to continue, please close this browser.
If you have any questions about this research, please feel free to contact Dr Rachel Stocker directly by email at email@example.com.
This study has been approved by the Newcastle University Ethics Committee (ref: 4455/2020).