Are you a woman with a diagnosis of the genetic condition Congenital Adrenal Hyperplasia (CAH) aged between 25 and 64 years? You may be interested in taking part in our research survey.
We are endocrinology doctors at Newcastle University investigating uptake of cervical screening (aka smear testing) in women with CAH.
We know from previous research (e.g. the CaHASE study, 2013) that some women with CAH have a number of problems related to sexual health and fertility. We don't know if this also applies to sexual health tests, and we hope this survey will help us understand:
1. If women with Congenital Adrenal Hyperplasia (CAH) are less likely to attend their smear tests than other women in the population in general
2. What barriers there might be to women with CAH attending for their smear tests
3. How good health professionals are at discussing matters relating to sexual health and function at appointments, and whether this is something you would be open to talking about.
We would be very grateful if you would consider completing this short anonymous survey of 10 questions about attending cervical screening. It should take less than 5 minutes, and all answers are completely confidential (we will not ask for personal information such as name, address or date of birth, so no-one should be able to identify you from your answers).
Of course this is entirely voluntary and you may stop taking part at any point until your answers are submitted. Taking part in the survey should come at no risk to you and will not affect any of your medical care.
We hope to have results that we can share with our colleagues through publications and presentations to help improve the health and care of women with CAH. We will store your answers in anonymous fashion on our secure University electronic server and will erase them after 5 years. We will ask for you to indicate that you consent to taking part in the first question before beginning.
Please feel free to contact us on the email address below for any further information.
Drs Kerri Devine and Anna Mitchell